Information, Education, Support -Twin/Twin Transfusion Syndrome | Twin To Twin Transfusion Syndrome Foundation

411 Longbeach Pkwy., Bay Village, OH 44140

Eligibility

No restrictions, although individual support and information is available to women that have been diagnosed with Twin-to-Twin Transfusion Syndrome, families that have one or both twins with cerebral palsy, and (or) developmental delays due to TTTS.

Required documents

None

Hours

Varies

(800) 815-9211

Voice

https://www.tttsfoundation.org

[email protected]

Application process

Phone for information 24 hours a day, 7 days a week, If there is no answer please leave a message as all messages will be returned.

Fees

Free

Service area

United States

Description

Provides information, education, and advocacy to health care providers and the general public around the issue of twin to twin transfusion syndrome, including forms of TTTS called TAPS (twin anemia polycythemia sequence), SIUGR (selective intrauterine growth restriction) and TRAP (twin reversed arterial perfusion sequence). Materials include phone and social media resources for families diagnosed, at risk and those that have delivered special needs children as a result of TTTS.

Data provided by

211 Cleveland

What's Here

Speakers/Speakers Bureaus Disease/Disability Information Peer to Peer Networking

Providing organization

Twin To Twin Transfusion Syndrome Foundation

Provides educational, emotional, and financial support to families where a woman who is pregnant with identical twins or higher multiples has been diagnosed with Twin-to-Twin Transfusion Syndrome. If the condition is undiagnosed and untreated, it can result in death or birth defects for one or all multiples in the pregnancy.